Friday, October 12, 2007
test results
Well, we got back all the test results today. The good news is he does not have Neurofibratosis 2. We are only dealing with one tumor. The tumor is in a difficult place and very close to the facial nerve. He believes the Translab is the only way to go. He believes the Gamma Knife is too risky. He will lose all hearing in the left ear. The other option is to let him keep his hearing for as long as possible and remove it when it gets larger. Again there is the unknown of how fast it will grow, and what it will attach to. Currently, he has the hearing of a 65 year old man in that ear. So, do we wait and see what happens or just do it and face what is ahead. So we have some options to ponder, and then proceed with a plan. If anyone has any insight we would love to hear it.
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1 comment:
I dont know if you are still undergoing the plans, or what desicions you have made, but I just went in for the acoutic surgery last week. I am only 18, so yes, it's very rare for kids, or any young adult. We had my surgery at Methodist Hospital in San Antonio, the docters are amazing, and the recovery isnt as bad at the press states.
If you want your son to talk to someone about it, he can contact me, and my parents know about the whole precedure, for your sake.
I was just reading artcles and came across your blog, It's a traumatic situation, but if you ned any support my email is kzgreenarts@gmail.com
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